Instituciones
vinculadas a la Distrofia Muscular y otros desordenes neuromusculares
- DNM
AMERICAN
ASSOCIATION FOR WORLD HEALTH
1129 20th St., NW, Suite 400
Washington, DC 20036
(202) 466-5883
REHABILITATION INTERNATIONAL
25 East 21st Street
New York, NY 10010
INSTITUCIONES
QUE BRINDAN INFORMACION SOBRE DNM
The Washington University School of Medicine, St Louis
http://www.neuro.wustl.edu/neuromuscular/index.html
The Human gene Mutation Database, Institute of Medical Genetics,
Cardiff
http://www.cf.ac.uk/uwcm/mg/hgmd0.html
National Center for Biotechnology Information, Bethesda
http://www3.ncbi.nlm.gov/
The American Academy of Neurology
http://www.aan.com
Research and Training Center for Neuromuscular Diseases
http://medpmr.ucdavis.edu/
The Foundation for Gene and Cell Therapy
http://www.uwo.ca/biochem/DMD/
Jesse's Journey for Gene and Cell Therapy
http://www.uwo.ca/biochem/DMD/Jesse.html
Go MCA Info
http://www.ultranet.com/~smith/GoMDAInfo.html
INSTITUCIONES DE DNM ESPECIALIZADOS
ALS/MND
International Alliance of ALS/MND Associations
http://www.alsmndalliance.org
ALS Society of Canada
http://www.als.ca/
INTERNATIONAL INFORMATION EXCHANGE FOR MND/ALS ASSOCIATIONS
P.O. Box 246
Northampton NNI 2PR
UNITED KINGDOM
ATAXIAS
European Federation of hereditary ataxias
http://www.vsn.nl/euroataxia/index.htm
National Ataxia Foundation
http://www.ataxia.org/
OTRAS
Acid Maltase Deficiency Association, USA
http://members.aol.com/amdapage/index.htm
CMTnet: Charcot-Marie-Tooth Disease Information Exchange
http://www.ultranet.com/~smith/CMTnet.html
European Consortium on Chronic Respiratory Insufficiency
http://www.vsn.nl/eccri/eccri/home.htm
